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UID:
CATEGORIES:Vortrag
SUMMARY:ÖPPM Webinar -"Public perspectives on the donation and sharing of genomic and health information: findings of a global study"
LOCATION:Webinar
DESCRIPTION;ENCODING=QUOTED-PRINTABLE:\n\n	 \n\n\n	Speaker: Dr Richard Milne (Wellcome Genome Campus)\n\n\n	
  \n\n\n	Chaired: Univ. Prof.in Mag.a Dr.in Barbara Prainsack (Departme
 nt of Political Science, Vienna, Austria):\n\n\n	In this talk, I discuss th
 e importance of public and patient perspectives in the development of genom
 ic medicine, and present the findings of the Your DNA, Your Say study. Your
  DNA, Your Say is a survey of public attitudes towards the donation and sha
 ring of genomic and health data, including 37,000 responses in 15 languages
  across 22 countries. I present the findings of the study in relation to pe
 ople’s willingness to donate data about them for clinical and researc
 h use, and examine how this is influenced by their familiarity with genetic
 s, their views of genetic information and their trust in those responsible 
 for collecting and managing data.\n\n\n	 \n\n\n	Further information: h
 ttps://www.personalized-medicine.at/4th-annual-meeting-of-the-oeppm/\n\n\n	
  \n
CONTACT:ÖPPM
DTSTAMP:20260630T002354Z
DTSTART;TZID=Europe/Vienna:20201124T163000
DTEND;TZID=Europe/Vienna:20201124T173000
SEQUENCE:1
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